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Padova meeting starting tomorrow

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    • 4 July 2023 at 9h33 #4726
      Laure Elkrief
      Keymaster

      Dear colleagues,

      As a reminder, the Padova ERN-Valdig workshop will start tomorrow morning.
      For those who want to participate, please find below the zoom link and the program!

      https://unipd.zoom.us/j/89449704763

      PROGRAM
      Tuesday 4th July
      – Arrival of the participants in the evening

      Wednesday 5th July
      – 8.30 Welcome and introduction from ERN rare liver/ Valdig (A. PLESSIER, M. SENZOLO, V HERNÁNDEZ-GEA)
      Session 1: Definition of the needs/ Position papers/guidelines
      Moderators M. SENZOLO/L.TURCO/ D VALLA
      1. Past or ongoing ERN/ VALDIG collaborations
      – 8.45 Report from the ERN R-liver/EASL/VALDIG position paper on Fontan associated liver disease (Luis TELLEZ)
      – 09.15 Update of current and future needs in portal vein thrombosis after VALDIG/ERN Paris PVT meeting 2022 for adults (Laure ELKRIEF +/- PE RAUTOU)
      – 9.30 Discussion of current and future needs in portal vein thrombosis after VALDIG/ERN Paris PVT meeting for children (Oanez ACKERMAN)
      – 10.00 Discussion
      – 10.45 Coffee Break

      2. Exploring future horizons

      – 11.15 Discussion of current and future needs in Budd-Chiari syndrome in adults (Aurélie PLESSIER)
      – 11.35 Discussion of current and future needs in Budd-Chiari syndrome in children (Isabel GONCALVES)
      – 11.55 Discussion
      – 12.30 Lunch break

      Session 2: Research strategies in VLD
      Moderators A PAYANCE/ S DARWISH MURAD
      13.45 Patients associations for VLD: how to involve them in research in VLD? (Sophie HULLIN)
      – 14.00 Discussion
      – 14.20 Pathology and VLD- Future challenges-New techniques-new data. Valerie PARADIS
      – 14.40 Ongoing or scheduled European grants for VLD (Virginia HERNÁNDEZ-GEA)
      – 14.55 Round table discussion
      – 15.20 Break
      Session 3: ERN rare liver / VALDIG organization: Communication.
      Moderators G.TOSETTI/ A. SHUKLA
      – 15. 45 Going from ENVIE and VALDIG registries to one ERN R- liver database (and biobanks): Progress made, practical tips, blocking points and potential solutions Laure ELKRIEF + Sarwa DARWISH MURAD
      – 16.25 Discussion
      – 16.50- 17.00 Visibility of and interactions within ERN for VLD. What has been done? What should we plan? (Sabina BERNHARDT)
      – 17.00 Visibility and interactions with European and national societies across the disciplines and Valdig. What has been done? What should we plan? (Akash SHUKLA)
      – 17.10 Discussion
      – 17.40 End of first day

      Thusday 6th July
      – Session 4: Scientific research projects proposals-
      – moderators Andrea DE GOTTARDI/ Pierre-Emmanuel RAUTOU/ Virginia HERNÁNDEZ-GEA

      – 8.30 Short presentation of ongoing VALDIG projects (Laure ELKRIEF)
      – 8.40 Open Projects Proposals + Discussion (to be announced by participants)
      1. International Registry for Pulmonary Vascular Complications of Liver Disease
      Sarah Raevens
      2. Performance of spleen stiffness measurement by vibration-controlled transient elastography to rule out high risk varices in patients with chronic PVT without cirrhosis. Lucile Moga A Plessier

      – Discussion

      – 12.30 End of the meeting and Lunch

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