You want to enter data of your patients into the common ERN database? Please read the steps to follow here

To help you, please find below files you might want to use: 

– Data transfer agreement between your center and ERN here 

– An example of ethic committee approval in French here

– An example of information to patients here

– An example of ethic committee approval in Dutch here

– An example of information to patients in Dutch here

– An example of ethic committee approval in Spanish here

– An example of information to patients in Spanish here