Launch of joint research activities of the ERN R-LIVER vascular liver disease group and European Vascular Liver Disease Interest Group (VALDIG)
5 to 6 July 2023
INTERNATIONAL EXPLORATORY WORKSHOP supported by ERN R-LIVER-vascular liver
diseases (VLD)
PROGRAM
Tuesday 4th July
– Arrival of the participants in the evening
Wednesday 5th July
– 8.30 Welcome and introduction from ERN rare liver/ Valdig (A. PLESSIER, M. SENZOLO, V
HERNÁNDEZ-GEA)
Session 1: Definition of the needs/ Position papers/guidelines
Moderators M. SENZOLO/L.TURCO/ D VALLA
1. Past or ongoing ERN/ VALDIG collaborations
– 8.45 Report from the ERN R-liver/EASL/VALDIG position paper on Fontan associated liver
disease (Luis TELLEZ)
– 09.15 Update of current and future needs in portal vein thrombosis after VALDIG/ERN Paris PVT
meeting 2022 for adults (Laure ELKRIEF +/- PE RAUTOU)
– 9.30 Discussion of current and future needs in portal vein thrombosis after VALDIG/ERN Paris
PVT meeting for children (Oanez ACKERMAN)
– 10.00 Discussion
– 10.45 Coffee Break
2. Exploring future horizons
– 11.15 Discussion of current and future needs in Budd-Chiari syndrome in adults (Aurélie
PLESSIER)
– 11.35 Discussion of current and future needs in Budd-Chiari syndrome in children (Isabel
GONCALVES)
– 11.55 Discussion
– 12.30 Lunch break
Session 2: Research strategies in VLD
Moderators A PAYANCE/ S DARWISH MURAD/ F NERY
– 13.45 Patients associations for VLD: how to involve them in research in VLD? (Sophie
HULLIN)
– 14.00 Discussion
– 14.20 Pathology and VLD- Future challenges-New techniques-new data. Valerie PARADIS
– 14.40 Ongoing or scheduled European grants for VLD (Virginia HERNÁNDEZ-GEA)
– 14.55 Round table discussion
– 15.20 Break
Session 3: ERN rare liver / VALDIG organization: Communication.
Moderators G.TOSETTI/ A. SHUKLA
– 15. 45 Going from ENVIE and VALDIG registries to one ERN R- liver database (and
biobanks): Progress made, practical tips, blocking points and potential solutions Laure
ELKRIEF + Sarwa DARWISH MURAD
– 16.25 Discussion
– 16.50- 17.00 Visibility of and interactions within ERN for VLD. What has been done? What
should we plan? (Sabina BERNHARDT)
– 17.00 Visibility and interactions with European and national societies across the disciplines
and Valdig. What has been done? What should we plan? (Akash SHUKLA)
– 17.10 Discussion
– 17.40 End of first day
Thusday 6th July
– Session 4: Scientific research projects proposals-
– moderators Andrea DE GOTTARDI/ Pierre-Emmanuel RAUTOU/ Virginia HERNÁNDEZ-GEA
– 8.30 Short presentation of ongoing VALDIG projects (Laure ELKRIEF)
– 8.40 Open Projects Proposals + Discussion (to be announced by participants)
– Discussion
– 12.30 End of the meeting and Lunch
Workshop focus on vascular liver disease 07 06 2023 -SDM