our Center of reference for HHT (Maggiore Hospital , Crema , Italy) belongs to VASC-ERN, and I am co-chair of the VASCERN-HHT group. So , one more Valdig member in the ERN. I would be more than happy to foster collaboration between VALDIG and VASC-ERN if you feel appropriate.
All my best !
Thank you very much Elisa for this important information. Your contribution will be very important and in this perspective Juan Carlos Garcia-Pagan and Aurélie Plessier are the contact persons. They will follow with updates after their contact with the ERN through Joost Drenth and Dave Jones.